Note that whilst a sterile technique may be possible in a hospital environment, at home it is neither necessary nor practical – the accepted standard for EB dressings is cleanliness. Dressings for wounds should be changed every day whilst the nappy area is dressed as often as needed.

Remember to wash your hands carefully before and regularly during dressing changes. Make sure you have your supplies ready before you begin:
  • Sterile needles/ lancets
  • Antibiotic/ antiseptic ointment if needed
  • Vaseline, Aquaphor® or other
  • Contact layer eg Vaseline gauze/ Mepitel®, Restore®
  • Soft conforming stretch rolled gauze
  • Tubular retaining dressing - avoid tape or adhesives
Ideally there should be 2 people available for the dressing procedure; having assistance greatly speeds things up. Giving paracetamol or ibuprofen beforehand may be helpful; stronger analgesics such opiates may be needed under certain circumstances but will cause drowsiness.
Stay in Touch
Get registered to receive latest updates in research, clinical trials and be part of our Hong Kong EB community. register
Wudy’s story
Beyond Words to Describe our Experience

(translated by Google Translate)
Married for seven years, long-awaited first-time mother when I thought I was happiest...
read more

Join the Hong Kong EB Community

Receive latest updates on research, clinical trials and EB-related news in Hong Kong