Supporting those suffering with EB. DEBRA Hong Kong is a charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
What is Epidermolysis Bullosa (EB)?
courtesy of DEBRA of Austria
Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.

Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wings of a butterfly.
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Caring for EB Patients

Caring for EB patients requires specialised skills, please find below resources that can help

Caring for a New Baby with EB

Help with New Patients

Pain Free Washing

Frequently Asked Questions (FAQs)

Make a Difference
Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support.
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News
19 Jan 2020
This 4-day meeting was held in London close to St Thomas’ Hospital, which has a Rare Diseases Centre that looks after patients with EB.read more
About DEBRA Hong Kong
DEBRA Hong Kong is a charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.