What is EB?
Watch our animation which explains EB and what
life is like for those living with the condition.
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life is like for those living with the condition.
Supporting those suffering with EB.
DEBRA Hong Kong is a charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
What is Epidermolysis Bullosa (EB)?
courtesy of DEBRA of Austria
Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.
Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wings of a butterfly.
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Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wings of a butterfly.
Caring for EB Patients
Caring for EB patients requires specialised skills, please find below resources that can help
Caring for a New Baby with EB
Help with New Patients
Pain Free Washing
Frequently Asked Questions (FAQs)
Make a Difference
Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support.
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News
About DEBRA Hong Kong21 Mar 2023
Debra Hong Kong is delighted to partner with the 3rd Congress of the Asian Pacific Society for Scar Medicine'. Scarring issues specific to EB will be discussed.read more
02 Feb 2023
On the 27th and 28th, we will host a two-day meeting on the challenges of managing EB with overseas faculty from New Zealand, Singapore, Australia, Taiwan and the Philippines.read more
05 Dec 2022
EB in the news. Dr Tor Wo CHIU and Wudy Lo went on RTHK (5th December 2022) to talk about epidermolysis bullosa.read more
DEBRA Hong Kong is a charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.