What is EB?
Watch our animation which explains EB and what
life is like for those living with the condition.
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life is like for those living with the condition.
Supporting those suffering with EB.
DEBRA Hong Kong is a charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
What is Epidermolysis Bullosa (EB)?
courtesy of DEBRA of Austria
Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.
Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wings of a butterfly.
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Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wings of a butterfly.
Caring for EB Patients
Caring for EB patients requires specialised skills, please find below resources that can help
Caring for a New Baby with EB
Help with New Patients
Pain Free Washing
Frequently Asked Questions (FAQs)
Make a Difference
Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support.
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News
About DEBRA Hong Kong08 May 2026
After several IVF treatments, the first time Wudy saw her newborn daughter, she was wrapped in bandages...read more
24 Apr 2026
In 2011, a mother in Hong Kong held her newborn baby...read more
15 Apr 2026
Rare diseases know no borders, and neither does the mission of DEBRA.read more
DEBRA Hong Kong is a charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.