Mother’s Day Series: Wudy’s Story 08 May 2026 After several IVF treatments, the first time Wudy saw her newborn daughter, she was wrapped in bandages... read more

Living with RDEB: A Mother’s Perspective 24 April 2026 In 2011, a mother in Hong Kong held her newborn baby... read more

Who’s Heard of EB? Our Campaign from London 15 April 2026 Rare diseases know no borders, and neither does the mission of DEBRA. read more

Elliott’s Day in the Life - Living with Skin as Fragile as Butterfly Wings 30 January 2026 Elliott’s Day in the Life - Living with Skin as Fragile as Butterfly Wings read more